Even though each new day brings a fresh grabbag of wonder... Wonder what symptoms - I'll be dealing with today?
Occasionally, I have a clue based on the prior days events, what to expect. Some days I awake with old familiar things, while others are fresh & startling. Frequently they begin in my sleep.
Most mornings I count on stiffness at a minimum but some days it's too much to bare movement, which is especially problematic when you have bladder & bowel issues.
And, of course, when I refer to morning I simply mean 'whatever' hour ~dark or light~ when slumber ends. Which is very random & one of my biggest struggles. Sleep patterns are elusive!
Even when I try to accommodate a new normal - it changes! Ever since I can remember sleep has only been available to me in windows of opportunity. When an opportunity is missed I simply must wait for another. I have been known to sleep more than 24hrs in a stretch, my body simply crashes! However my current situation more closely resembles to that of a newborn in small stints at random times.
Although, I've become dramatically sedentary, unfortunately a more active lifestyle is out of the question at this point. I have however made mad changes in every other respect with the greatest efforts toward reducing toxic load. Not only in my diet; using the rules of Local, Organic, Raw, No processing, Non-GMO as a guide but rarely do I even wear makeup, brush with toothpaste, or use deodorant. No worries, I have found healthy natural non-commercial replacements.
This doesn't come without some backlash. For instance; Poliosis was a condition I didn't realize I had. The grey streak I had covered with dyes for over 20yrs trying to deny premature graying is now prominent but, I wear the white streak that affects my scalp, eyebrow, & lashes like a badge of honor at this point. It's yet another trait, like the HLA B27 that I carry, as a reminder of my ancestors.. Native Americans /Indigenous People.
It's amazing these things I've discovered through this journey that were first interpreted as a curse but actually a blessing!!
Last year at this time I barely had the strength to think about holidays. This year I put together a Christmas installation with Ladders! Counting my blessings!!
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