& while it's taken some adapting... I have curbed my responses, cognizant of each situation, respectively.
ie> Insensitive sales rep, having noticed limp, patronizing & condescending = (curt) "partially paralyzed!".
Alternatively, sincere grocery clerk = (conciliatory) "just life!?".
Honestly responding would take several minutes & No One is that Interested....
Therefore, here is my new synopsized reply; (in light of & I think coinciding with Dr. Meglathery's findings) if you have that kind of time....
Genetically modulated autoimmune comorbities!
coinciding with RCCX theory of mitochondrial shutdown / cell danger response .
(self analysis speaks to CAPS profile, genetic confirmation of CYP21A2 sought)
-_------------------------------------_-
For detailed list of damages, see following itemization/all-inclusive medical autobiography, as compiled:
Multiple maternal Consanguineous Marriages (verified; hereditary -lineage- investigations;
DNA confirmation *chromosome 6 & 13 specifically sought)
Forceps delivery
*persistent indentations, (@49yrs of age)
{mother polio victim w/numerous waist down surgeries;
I question DX, in light of my conditions to date +hypothesis =4 generation+/- (living) genetic lineage evidence.}
The following evidence outlines medically relevant/historically Stella
- in mostly chronological order, with some grouping by category...
congenital- hip displaysia
Linear & bilateral accessory tragus (congenital sign assoc. w/golden~har & vertebral deformities)
Congenital labia majora mass
Left handedness changed to right (+asymmetric face -craniofacial microsomia
& hands 2d:4d comparison, +asymmetry, =androgen exposure?)
Early chicken pox (?)
Anaphylaxis (OJ)
Stitches (elbow & chin both retained thread, yrs! until inflammatory response *ejects!)
Environmental allergies (severe)
Chronic Sinusitis
Mild asthmatic
(chronic bronchitis)
Vitamin D & calcium deficiencies
(milk intolerant) (malabsorption)
Broken front teeth (multiple dental surgeries -bone loss, slow healing, sinus, etc)
Insomnia, circadian rhythm issues -life long w/alternating bouts of 'mini-coma'
Juvenile arthritis
Double (2) bout chicken pox
(? +2nd round !)
Fracture radial head (?inflam?)
Subluxating / lax joints
Juvenile arthritis
Late onset puberty w/
Extreme Menses
slow Digestive, IBS, suspect gastroparesis; multiple events of -enteritis, hemorrhoids
(+ impaction & prolapse)
MVA - back & neck +compression injuries
+incidental finding: Schuerrmans Spine (kyphosis/ lordosis -extreme posture)
Levo-Scoliosis
(mild+ progressive)
Cervical Stenosis (progressive)
Spondylolithesis
(lumbar spine)
Spondylitis (degenerative spine: disc/vertebrae)
Thoracic Outlet, Teitze, Costochrondritis (independently, affecting ribs, sternum, brachial, etc.. leading to impingement -2x)
Bone Cyst of T12-L1 (thoracolumbar spine)
Radiculopathy, Neuropathy
Gout, Sciatica, Plantar Fasciatis, shin splints
Fibroidal uterus,
(PCOS) polycystic ovaries,
Endometriosis (+ ando) ~inconsistent radiography ~
5 (troubled) pregnancies - 2 miscarriage (ALL gestational diabetes, iron deficient, + BP)
Delivery issues (3 C-sections, 2 duress, 1 placenta previa, 1 born w/mesenchymal hamartoma of liver, 1 genetic counseling + Amnio)
Appendectomy
*7hr DX - near bursting (between pregnancies)
Poliosis (mallen streak)
*VKH/ Native American
Septoplasty (deviated septum - egg size cyst removed - *inconsistent radiography) *septum (20yrs post) deviates L (vs. R, previous surgically opened sinus)
Hysterectomy (@33)
Migraine syndrome
Bells palsy (L: resolved)
Stroke like attacks/episodes, easchemia, + oedema response
Dry eyes & mouth (consistent in setting of sjogrens)
(MCAS)Mastocystosis
Reynaud's
Dermatomyositis
Other dermatological/cutaneous manifestions: mild vitiligo & alopecia, with occurences of myosistis, urticaria, bullous phemphigold, carbuncles, inverse psoriasis)
Dercums disease
(SAT - subcutaneous Adipose
-fatty- tissue disorder) +developing lipodema
Gerd (silent)
Barrett's esophagus
Bowel & bladder continence
CFS/ME (*overlapping
chronic pain/fatigue)
Hashimotos thyroiditis (suspect)
Hypertrophic sub- lingual tonsillectomy (biopsy)
Uevitis/iritis OA (both eyes)
+Double Vision
POTS
Vertigo - intermittent
(balance, & dizziness)
Dysautonomia,
Mitochondrial dysfunction (?!!)
Hearing Loss
Hemi-paresis (right sided)
Myosistosis (muscle inflammation, bone pain)
Sacroillitis (SI joints)
Hip Pain (acetabular/femoral alignment, psoas muscle*)
HLA B27+ (indigenous lineage, MHC: major histocompatability complex,
blessing of longevity & resistance ~ curse of autoimmunity+ chronic illness)
Mixed connective tissue disorder
Undifferentiated Spondyloarthropathy
*overlapping syndrome(s)
Confirmed height loss
(approx.1")
intervals of: Uncontrolled weight loss &/or gain
Cardio intervention re: blood pressure (hypertensive, fluctuating, murmur evaluation, -cholesterol med, diuretic, etc.. discontinued - over medicated per: cardiac specialist)
Myocardia ischemia
(silent angina per: anesthesiologist)
*VKH - syndrome consistent (prevalent native american) in presence of poliosis, uevitis, alopecia, & vitiligo
*CREST -
Calcinosis
Reynaud's
Esophageal
Sclerosis
Telangiectasia
*poor pharmaceutical response; allergic~ stadol, pseudo~ morphine, hydro-, administered with finergan or buffer for tolerance
{•tolerate dilaudid best}
Neurontin (via endocrinologist = kidney infection
Cymbalta (via rheumatologist) = urticaria, etc...
Opiod = constipation, etc..
Intra Spinal injections tolerated but limited efficacy
All Discontinued: OTCs, prescriptions, & medical visits/intervention
Replaced by;
?!lidocaine patches
Tens,
home therapies,
diet!
Food intolerance:
bok choy
(excessive dark leafy greens),
NightShades
(eggplant, potatoes, tomatoes, peppers ~mild-hot~) as autoimmune inflammatory trigger, confirmed!
Possible Gluten intolerance/Leaky Gut, unconfirmed..
Directives:
Living Will - DNT
Do Not Treat!!
Do Not Resuscitate!!
No extraordinary measures!!
No medical intervention! 0%!
No life sustaining machines or intibation!
If any, medical intervention, only under guidance of Dr. Karen L Herbst.
Rescending all prior Organ/Tissue Donation/Transplantation otherwise.
Sorry if confusing but, I find myself in one of those manic, yet brain fogged states...
To be continued...
(Accepting comments & interpretations)
(Would add link to Dr.Meglathery's site but, not patient & don't know if she may concur)...
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