Tuesday, December 16, 2014

End '14 ~ Outlook '15

57% of patients with subchondral marrow edema had no observable abnormality in articular cartilage
This is the type of information I'm reading & trying to understand in relation to my current medical circumstances.
As a former Realtor having to return to service industry subsequent to the failure of my 2nd marriage ('07) & simultaneous crash of Florida real estate market (who was already plagued by preexisting health issues but unable to obtain insurance...) I was thrilled to have the best coverage & medical care of my life over the last 6 months ~like it or not, Thanks to ObamaCare~.

Yesterday was 12/15/14 so as eligibility requirement for re-enrollment I called to complete the process under new guidelines. Long story short; because I have been unable to work, I have thus returned to the ranks of the uninsured, being referred to Medicaid.
So ultimately I obtained some new labels for my ailments, confirmation of distressing prognosis, & then cast aside yet again. The representative tried to console me indicating this could actually be a blessing but I don't see how that's possible... My team of specialists - imaging facilities are all (centrally located about 20-30min travel time) in North Carolina, while I reside in South Carolina.

In other catastrophic news... My diagnosis' have rocked my world at its core, literally. It brought forth a genetic diagnosis that initiated familial stress (as it correlated with ancestral secrets & gave rise to recent lineage findings) further limiting my already limited support system.

Meanwhile, my ex-husband continues to try and evade IRS debt while sticking me with a tax lien & levy via my former employer (whose employ I had to leave because of the anxiety levels she causes me) all regarding jointly owned property that I no longer stand to receive any benefit from. Did I mention the genetic factor I have mediates the immunological attack against my body based on environmental stimulus & STRESS!!
[Side Bar: I had married my ex-husband for benefit of Insurance coverage, that & our son was nearly 3yrs. of age at the time {unfortunately, this is a separate story in & of itself} so it seemed past due.  Although, I had received treatment and diagnosis for a Rare Fatty Tissue Disorder (at the time) it turned out to be the biggest mistake of my life {also, a different story}!!  Besides causing hurt feels with my first born children, I was verbally & emotionally abused over it consistently by my now ex-,  was entirely alienated from my youngest child since the divorce, & ultimately, the labeling of ailments was of no benefit to my care or otherwise even having had obtained said coverage!]

Now I have new labels & the inability to return to work because of the culmination of my systemic issues. I have no choice but to keep the faith! 

Newly adopted moto:  My circumstances are giving me the skills that will prepare me for what is to come.

I will appreciate your prayers!!!
HLA B27
Urology follow up - not until January
(CT diaphragm to thighs)
Awaiting results of throat growth (epiglottis) biopsy
Acute & SubAcute iridocycilitis (eyes currently under steroid control)
Undifferentiated SpondyloArthropathies
Mixed Connective Tissue Disorder
I continue self treatments; diet, yoga and physical therapy exercises, etc..
Final 2014 NC Rheumatology Appt. 12/19

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